9-year-old Internet sensation battles rare bone disease - WKRN News 2

9-year-old Internet sensation battles rare bone disease


Robby Novak, better known as "Kid President," became an Internet sensation after posting a series of videos on YouTube about how people can make the world a better place.

Looking at Robbie, one would probably think he is perfectly healthy, but the nine-year-old from west Tennessee is fighting a rare genetic disease called osteogenesis imperfecta which causes his bones to break easily.

The third grader has already broken more than 70 bones and has undergone more than a dozen surgeries.

Robbie and his sister Lexi, 10, who also has the disease, visit Vanderbilt Children's Hospital every 13 weeks for an infusion of medicine to make their bones stronger.

Robbie's sense of humor and enthusiasm continues to inspire the doctors who treat him.

"To go through what he's gone through, the amount of pain and surgeries and limitations on his life that he's had and yet he doesn't allow it to limit him in any way," said Dr. Jill Simmons.

At least a dozen states do not have doctors or clinics that care for patients with the disease so many travel to Nashville for treatment.

The disease affects between 25,000 and 50,000 people in the United States.

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