9-year-old Internet sensation battles rare bone disease - WKRN News 2

9-year-old Internet sensation battles rare bone disease

Posted:
NASHVILLE, Tenn. -

Robby Novak, better known as "Kid President," became an Internet sensation after posting a series of videos on YouTube about how people can make the world a better place.

Looking at Robbie, one would probably think he is perfectly healthy, but the nine-year-old from west Tennessee is fighting a rare genetic disease called osteogenesis imperfecta which causes his bones to break easily.

The third grader has already broken more than 70 bones and has undergone more than a dozen surgeries.

Robbie and his sister Lexi, 10, who also has the disease, visit Vanderbilt Children's Hospital every 13 weeks for an infusion of medicine to make their bones stronger.

Robbie's sense of humor and enthusiasm continues to inspire the doctors who treat him.

"To go through what he's gone through, the amount of pain and surgeries and limitations on his life that he's had and yet he doesn't allow it to limit him in any way," said Dr. Jill Simmons.

At least a dozen states do not have doctors or clinics that care for patients with the disease so many travel to Nashville for treatment.

The disease affects between 25,000 and 50,000 people in the United States.

  • Most Popular StoriesMost Popular StoriesMore>>

  • Missing Manchester mom found in Colorado, on way home

    Missing Manchester mom found in Colorado, on way home

    Jul 28, 2014 06:42 PM2014-07-28 23:48:00 GMT
    According to the Coffee County Sheriff’s Department, Brooke Roberts, 30, was found safe over the weekend in Colorado.More >>
    According to the Coffee County Sheriff’s Department, Brooke Roberts, 30, was found safe over the weekend in Colorado.More >>
  • Knoxville meteorologist's response to viewer goes viral

    Knoxville meteorologist's response to viewer goes viral

    A Knoxville meteorologist responded to a viewer’s letter on Facebook because there was no return address, and the post went viral.More >>
    A Knoxville meteorologist responded to a viewer’s letter on Facebook because there was no return address, and the post went viral.More >>
  • FL man spray-paints garage door with message for thief

    FL man spray-paints garage door with message for thief

    Sunday, July 27 2014 11:39 AM EDT2014-07-27 15:39:37 GMT
    Jerry Ashley's message spray-painted on his garage door.Jerry Ashley's message spray-painted on his garage door.
    A Lakeland man has spray-painted his garage door with a message for the thief who stole his late wife’s laptop filled with sentimental photos.Jerry Ashley is still grieving over the passing of his wife Darlene, who died from an aneurysm last month at the age of 48.His loss has been compounded by thieves, who broke into his Lakeland home this week.Ashley has a lot of fond memories of his wife, and many of those memories are stored in a computer that was stolen from his home, now he taking an u...More >>
    A Lakeland man has spray-painted his garage door with a message for the thief who stole his late wife’s laptop filled with sentimental photos.Jerry Ashley is still grieving over the passing of his wife Darlene, who died from an aneurysm last month at the age of 48.His loss has been compounded by thieves, who broke into his Lakeland home this week.Ashley has a lot of fond memories of his wife, and many of those memories are stored in a computer that was stolen from his home, now he taking an u...More >>
Powered by WorldNow

441 Murfreesboro Road Nashville, TN 37210

Telephone: 615.369.7222
Fax: 615.369.7329
Email: news@wkrn.com

Can’t find something?
Powered by WorldNow
All content © Copyright 2000 - 2014 Young Broadcasting of Nashville, LLC. A Media General Company.